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The SESKPA is the patients' association for renal patients in Edinburgh, Lothian and the Borders. This webspace is available for further information and development!

To send a message to the SESKPA, for the present email us at EdREN: Renal@ed.ac.uk

Of particular interest, try the following:

Patients' experiences

The history of dialysis and transplantation in Edinburgh

 

Performance of the Units, with links to nationally and internationally developed standards

Patients' experiences


Read
Joyce and Elizabeth's transplant experiences

Nothing brings home the reality of renal failure as much as talking to people who are suffering from it. Almost as good is to read good written accounts from patients who have gone through it. Some of the accounts listed here are just typical, some are unusual, but many are remarkable.

  Professor Robin Eady was a medical student when he discovered that he had renal failure. In 1963 almost nobody received dialysis for chronic renal failure, but he managed to, by going to Seattle, where the first long-term dialysis programme was just beginning. Here he describes the shock of learning his diagnosis, and his experiences of haemodialysis in those very early days. He is believed to be the longest surviving dialysis patient in the world. Dr Belding Scribner wrote a tribute to him in 2000.
  The Kidney Information Centre has a lot of excellent links and information, with special detail on two unusual dialysis patients, James Michener (a best-selling author who stopped his dialysis when he was 90) and another doctor, Peter Lundin. Spend time looking at the other excellent resources for patients - about the hazards of missing dialysis, or cutting it short, and the importance of looking after your vascular access, and the meaning of blood tests.
  Experiences from the Singapore Kidney Dialysis Foundation are excellent, and don't pull punches when it comes to bad outcomes either. Click on 'Patients sharing'.
  The compilation of patients' and carers' experiences from Cardiff is good.
  The kidneydirections site is sponsored by Baxter Healthcare. It gives quite good comparisons of dialysis types but also has stories each month from a 'patient of the month', which are generally helpful.

Transplant patients experiences - there is a really excellent series of accounts on the UK Transplant site.
  Do you know of other good accounts? Or have your own? Let us know at renal@ed.ac.uk

 

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This page last modified 07.07.2010 14:50 by Emma Farrell. edren and edrep are produced by the Renal Unit at the Royal Infirmary of Edinburgh and the University of Edinburgh. CAUTIONS and Contact us.