The ERA-EDTA codes are used for registering patients on the Proton database. They have a number of shortcomings and anomalies but we are stuck with them. These are the 1995 version.

PRIMARY RENAL DISEASE CODES CAUSE OF DEATH CODES
Primary glomerulonephritis  
Pyelonephritis  
Interstitial nephritis  
Familial/hereditary MALIGNANCY CODES
Congenital  
Vascular  
Secondary glomerular/ systemic  

 

Disease codes

Primary renal disease CODE
Primary glomerulonephritis  
  Glomerulonephritis; histologically NOT examined
10
  FSGS with nephrotic syndrome in children
11
  FSGS with nephrotic syndrome in adults
17
  IgA nephropathy (proven by IF, not code 76 and not 85)
12
  Membrano-proliferative GN; type I (proven by IF and/or EM - not code 84 or 89)
15
  Dense deposit disease; MPGN type II (proven by IF and/or EM)
13
  Membranous nephropathy
14
  Crescentic (extracapillary) glomerulonephritis (type I, II, III)
16
  Glomerulonephritis; histologically examined, not given above
19
     
Pyelonephritis  
  Pyelonephritis associated with neurogenic bladder
21
  Pyelonephritis due to congenital obstructive uropathy with/without vesico-ureteric reflux
22
  Pyelonephritis due to vesico-ureteric reflux without obstruction
24
  Pyelonephritis due to acquired obstructive uropathy
23
  Pyelonephritis due to urolithiasis
25
  Pyelonephritis due to other cause
29
  Pyelonephritis - cause not specified
20
     
Interstitial nephritis   
  Nephropathy (interstitial) due to analgesic drugs
31
  Nephropathy (interstitial) due to cis-platinum
32
  Nephropathy (interstitial) due to cyclosporin A
33
  Drug induced nephropathy (interstitial) not mentioned above
39
  Lead induced nephropathy (interstitial)
34
  Gout nephropathy (urate)
92
  Nephrocalcinosis and hypercalcaemic nephropathy
93
  Interstitial nephritis (not pyelonephritis) due to other cause, or unspecified (not mentioned above)
30
     
Familial/hereditary renal diseases   
  Polycystic kidneys; adult type (dominant)
41
  Polycystic kidneys; infantile (recessive)
42
  Medullary cystic disease; including nephronophtisis
43
  Cystic kidney disease - other specified type
49
  Cystic kidney disease - type unspecified
40
  Hereditary/Familial nephropathy - type unspecified
50
  Hereditary nephritis with nerve deafness (Alport's Syndrome)
51
  Cystinosis
52
  Primary oxalosis
53
  Fabry's disease
54
  Hereditary nephropathy - other specified type
59

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Primary renal disease Code
Congenital diseases   
  Renal hypoplasia (congenital) - type unspecified
60
  Oligomeganephronic hypoplasia
61
  Congenital renal dysplasia with or without urinary tract malformation
63
  Syndrome of agenesis of abdominal muscles (Prune Belly)
66
     
Vascular diseases
 
  Renal vascular disease due to malignant hypertension
71
  Renal vascular disease due to hypertension
72
  Renal vascular disease due to polyarteritis (include MPA)
73
  Renal vascular disease - due to other cause (not given above and not code 84-88)
79
  Renal vascular disease - type unspecified
70
     
Secondary glomerular/systemic disease   
  Cryoglobulinemic glomerulonephritis
78
  Diabetes glomerulosclerosis or diabetic nephropathy
80
  Myelomatosis/light chain deposit disease
82
  Amyloid
83
  Lupus erythematosus
84
  Henoch-Schoenlein purpura
85
  Glomerulonephritis related to liver cirrhosis
76
  Wegener's granulomatosis
74
  Goodpasture's Syndrome
86
  Systemic sclerosis (scleroderma)
87
  Haemolytic Uraemic Syndrome (including Moschcowitz Syndrome)
88
  Multi-system disease - other (not mentioned above)
89
     
Miscellaneous   
  Tubular necrosis (irreversible) or cortical necrosis (not code 88)
90
  Tuberculosis
91
  Gout
92
  Nephrocalcinosis and hypercalcaemic nephropathy
93
  Balkan nephropathy
94
  Kidney tumour
95
  Traumatic or surgical loss of kidney
96
  Other identified renal disorders
99
  Chronic renal failure; aetiology uncertain
00

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Cause of Death codes 

Cause of death
CODE
  Cause of death uncertain/not determined
0
  Myocardial ischaemia and infarction
11
  Hyperkalaemia
12
  Haemorrhagic pericarditis
13
  Other causes of cardiac failure
14
  Cardiac arrest/sudden death; other cause or unknown
15
  Hypertensive cardiac failure
16
  Hypokalaemia
17
  Fluid overload/pulmonary oedema
18
  Pulmonary embolus
21
  Cerebro-vascular accident, other cause or unspecified
22
  Gastro-intestinal haemorrhage
23
  Haemorrhage from graft site
24
  Haemorrhage from vascular access or dialysis circuit
25
  Haemorrhage from ruptured vascular aneurysm (not code 22 or 23)
26
  Haemorrhage from surgery (not code 23, 24 or 26)
27
  Other haemorrhage (not codes 23-27)
28
  Mesenteric infarction
29
  Pulmonary infection (bacterial - not code 73)
31
  Pulmonary infection (viral)
32
  Pulmonary infection (fungal or protozoal; parasitic)
33
  Infections elsewhere except virus hepatitis  
  Septicaemia
35
  Tuberculosis (lung)
36
  Tuberculosis (elsewhere)
37
  Generalized viral infection
38
  Peritonitis (all causes except for Peritoneal Dialysis)
39
  Liver disease due to hepatitis B virus
41
  Liver disease due to other viral hepatitis
42
  Liver disease due to drug toxicity
43
  Cirrhosis - not viral
44
  Cystic liver disease
45
  Liver failure - cause unknown
46
  Patient refused further treatment for ESRF
51
  Suicide
52
  ESRF treatment ceased for any other reason
53
  ESRF treatment withdrawn for medical reasons
54
  Uremia caused by graft failure  
  Pancreatitis
62
  Bone marrow depression
63
  Cachexia
64
  Malignant disease, possibly induced by immunosuppressive therapy
66
  Malignant disease: solid tumors except those of 66
67
  Malignant disease: lymphoproliferative disorders except those of 66
68
  Dementia
69
  Peritonitis (sclerosing, with peritoneal dialysis)
70
  Perforation of peptic ulcer
71
  Perforation of colon
72
  Chronic obstructive airways disease
73
  Accident related to ESRF treatment (not 25)
81
  Accident unrelated to ESRF treatment
82
  Peritonitis (bacterial, with peritoneal dialysis)
100
  Peritonitis (fungal, with peritoneal dialysis)
101
  Peritonitis (due to other cause, with peritoneal dialysis)
102
  Other identified cause of death
99

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Malignancy codes

Malignancy
CODE
     
  Previously reported multiple primary malignancies
11
Skin (excluding lip and genital)
  Squamous carcinoma
20
  Basal cell carcinoma
21
  Squamous and basal cell carcinoma
22
Leukaemia and reticuloses
  Myeloma
25
  Acute leukaemia
26
  Chronic leukaemia
27
  Reticulum cell sarcoma
29
  Kaposi's sarcoma
30
  Lymphosarcoma
31
  Plasma cell lymphoma
33
  Hodgkin's disease
34
  Lymphoreticular tumour
35
  Histiocytic reticulosis
36
Gastro-intestinal tract
  Lip
40
  Tongue
41
  Parotid
42
  Oesophagus
43
  Stomach
44
  Colon
45
  Rectum
46
  Anus
47
  Liver-primary hepatoma
48
  Liver-primary lymphoma
49
  Gall bladder and bile duct
50
  Pancreas
51
Neck and Thorax
  Larynx
53
  Thyroid
54
  Bronchus
55
  Lung, primary tumour
56
Urogenital tract
  Kidney - Wilm's tumour
60
  Kidney - renal cell carcinoma of host kidney
61
  Kidney - renal cell carcinoma of graft kidney
62
  Renal pelvis
63
  Ureter
64
  Urinary bladder
65
  Urethra
66
  Prostate
67
  Testis
68
  Penis
69
  Scrotum
70
  Perineum
71
  Vulva
72
  Vagina
73
  Uterus - cervix
74
  Uterus - body
75
  Ovary
76
Miscellaneous
  Breast
80
  Muscle
81
  Bone
82
  Brain - primary lymphoma
83
  Brain - other primary tumour
84
  Other tumour of the central nervous system
85
  Metastatic carcinoma, primary site unknown
90
  Other primary tumour
99
   

 

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