As transplant follow-up will be devolved to regional centres, it is essential to collection transplant follow-up data for accurate assessment of this revised immunosuppression protocol. Each unit should nominate a lead clinician to coordinate data collection and liaise with their respective transplant coordinator.
Each unit should collect data on:
- Number of patients transplanted each year
- Acute rejection episodes – timing post-transplant, severity (Banff grade), treatment (including use of antibody)
- Immunosuppressive regimen at 6 and 12 months
- Serum creatinine at 6 and 12 months
- eGFR (MDRD) at 6 and 12 months
- Serum urate at 6 and 12 months
- BP at 6 and 12 months
- Quantification of proteinuria at 6 and 12 months
- Infections during first 12 months (CMV, BK virus, other)
- Malignancy during first 12 months (non-skin)
- New-onset diabetes after transplantation (NODAT)
- Graft survival at 12 months
- Patient survival at 12 months
It is planned that Scottish Renal Registry data collection should be used to facilitate this and that data should be set up to enable this to happen.