- Learn more about Alport Syndrome with Kidney, Genetics, Organ transplant, Hearing and Sight experts
- Put your questions to the medical team
- Find out about the experiences of others living with Alport Syndrome
- Meet individuals and families in similar situations and share your experiences
Our meeting is going to be held in Surgeon's Hall on Nicholson Street in central Edinburgh, just a short walk from Waverley station. The day will feature a number of short talks on different aspects of the disease and lots of opportunity to talk to others and ask questions. Lunch will be provided as well as activities for children. There will be a spearate workshop for teens and young adults. The event is free for all.
Outline programme for the day
Coffee & Registration
What is Alports? Neil Turner
Why join a registry? Neil Turner
Q&A and Feedback
Please contact firstname.lastname@example.org or call 01793 847264 - these are the contact details for the UK Patient Group.
Except for Edinburgh patients - if you are local, please contact us at email@example.com or call 0131 242 9167 (leave your name and number)
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